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Open research questions in Family and Disability Support Research

1,249 unresolved questions extracted from the limitations and future-work sections of 9,108 Family and Disability Support Research papers in our library. Each links back to the study that raised it.

What the literature leaves open

  • There is a lack of research on the relationship between religious coping and self-stigmatization in caregivers of children with chronic illnesses. Prior studies have focused on other populations, such as individuals with dementia and children with autism spectrum disorders.

    The Relationship Between Loneliness and Religious Coping With Self-Stigmatization in Caregivers of Children with Chronic Illnesses in Türkiye · 2026 · DOI

  • elevated stress experienced by couples raising autistic children - lack of autistic perspectives in the research base - need to address structural barriers supporting equitable family systems

    Family Adaptation in Families with Autistic Members: A Scoping Review and Thematic Synthesis of Relational Systems, Context, and Development · 2026 · DOI

  • the review was not prospectively registered, - the literature was predominantly anchored in Anglophone, high-income settings, - co-occurring intellectual disabilities and the heterogeneity of autistic support needs were not systematically examined, - the evidence base is predominantly mother-centric

    Family Adaptation in Families with Autistic Members: A Scoping Review and Thematic Synthesis of Relational Systems, Context, and Development · 2026 · DOI

  • Families with autistic adolescents face distinct relationship dynamics and challenges. External factors such as societal exclusion and misunderstanding of autism can reinforce family relationship patterns characterized by interpersonal distancing and relationship disruption. There is a need for culturally responsive practice that adapts to diverse cultural contexts and addresses unique barriers faced by culturally and linguistically diverse families.

    From Disruption to Connection: A Family-Based Practice Model for Enhancing Relationships in Families of Autistic Adolescents · 2026 · DOI

  • The model was developed with Australian families primarily of white, university-educated backgrounds - Limited research on family interventions for autistic adolescents - Limited emphasis on family-level priorities such as fostering open communication, improving cohesion, or building resilience

    From Disruption to Connection: A Family-Based Practice Model for Enhancing Relationships in Families of Autistic Adolescents · 2026 · DOI

  • One challenge is the difficulty in recognizing and addressing anxiety in neurodiverse children. Another challenge is the need for interventions to be practically relevant and emotionally validating. The term 'accommodation' carries a positive connotation within the disability communities, which can be a challenge in intervention design.

    Reducing Parental Accommodation in Neurodiverse Families: Adaptation of a Digital Single-Session Intervention · 2026 · DOI

  • Further research could explore the effectiveness of the adapted intervention - Studying the impact of incorporating caregiver anxiety management into the intervention could be a potential future direction

    Reducing Parental Accommodation in Neurodiverse Families: Adaptation of a Digital Single-Session Intervention · 2026 · DOI

  • The heterogeneity of autism creates challenges in determining which combination of treatments best addresses a child's unique profile and needs. Co-occurring conditions add complexity to treatment decisions. The scarcity of research on SDM interventions for autism-related parental decisions poses a challenge to developing effective interventions.

    Shared Decision Making Interventions for Parents of Children on the Autism Spectrum: A Systematic and Scoping Review · 2026 · DOI

  • high risk of bias and low methodological quality in the included studies, - limited reporting on the randomization process, - deviations from intended interventions

    Shared Decision Making Interventions for Parents of Children on the Autism Spectrum: A Systematic and Scoping Review · 2026 · DOI

  • Il faudrait mieux décrire, structurer et rendre visibles les services de pair-aidance, - Il faudrait clarifier le rôle des pairs et les modalités de soutien, - Il faudrait favoriser la crédibilité et le développement durable des services

    La pair-aidance familiale pour les familles d'enfants autistes en France: Synthèse de recherche · 2026 · DOI

  • Les services de pair-aidance familiale existants en France sont peu connus, en particulier pour les familles d'enfants autistes. Il existe un manque de clarté et de visibilité dans les descriptions publiques des services. Les familles ont du mal à trouver des soutiens adaptés et à être orientées vers des services après le diagnostic.

    La pair-aidance familiale pour les familles d'enfants autistes en France: Synthèse de recherche · 2026 · DOI

  • Investigating the long-term effects of parent-implemented early interventions, - Examining the impact of parent-implemented early interventions on different family dynamics, - Studying the factors that promote or discourage family members' involvement in parent-implemented early interventions

    Family outcomes of a parent-implemented early intervention for neurodevelopmental disorders: an exploratory study of family dynamics · 2025 · DOI

  • The existing literature focuses on parent-child dyads, leaving a knowledge gap on familial factors. Little is known about how family members who did not partake in the training react to parent-implemented interventions at home.

    Family outcomes of a parent-implemented early intervention for neurodevelopmental disorders: an exploratory study of family dynamics · 2025 · DOI

  • Further research is needed to evaluate the effects of other factors that may influence parenting stress. Investigating the differences in perceived parenting stress between mothers and fathers in different cultural contexts. Examining the relationship between parenting stress and child outcomes in autistic children.

    Understanding parenting stress in autism spectrum disorder: a cross-sectional study exploring differences between mothers and fathers · 2026 · DOI

  • Our findings contribute to the limited research on digital and traditional communication in ECSE settings and provides actionable recommendations for strengthening partnerships in early intervention services.

    Digital and Traditional Family-Professional Communication in Early Childhood Special Education · 2026 · DOI

  • There is limited research related to Part C Early Intervention (EI) services for families of children with medical complexities (CMC).

    Supporting Children with Medical Complexities: Strengths and Needs in Early Intervention · 2026 · DOI

  • Despite its promise, peer support for parents of children with NDD remains largely informal, under-researched and poorly integrated within standard healthcare, limiting its potential accessibility and impact.

    “No Words Needed”: Results of a Survey on How Parents of Children With Neurodevelopmental Disorders Perceive (In)formal Peer Support · 2026 · DOI

  • Little is known about what parents seek in peer support, how they experience it, and which factors facilitate meaningful engagement.

    “No Words Needed”: Results of a Survey on How Parents of Children With Neurodevelopmental Disorders Perceive (In)formal Peer Support · 2026 · DOI

  • Although caregivers of children with neurodevelopmental disabilities experience heightened stress, little is known about the influence of caregiver mental health and parenting style on pain outcomes in youth with CP.

    The Social Context of Pain in Youth With Cerebral Palsy: The Role of Caregiver Mental Health, Parenting Style and Protective Responses to Pain · 2026 · DOI

  • BACKGROUND: Children with long-term conditions (LTC) or disabilities often face participation restrictions in early learning and child care (ELCC), but little is known about their specific challenges.

    Participation Restrictions in Early Learning and Child Care Among Children With Long‐Term Conditions or Disabilities · 2026 · DOI

  • Yet, little is known about the well-being of parents at the intersections of single parenthood and raising a child with a disability.

    The Double Challenges of Single Parents Raising Children with Disabilities · 2026 · DOI

  • However, the role of family routines in relation to parenting stress among families of children with intellectual disabilities remains insufficiently understood.

    Family Routines and Parenting Stress in Families of Children With and Without Intellectual Disabilities: A Cross-Sectional Study · 2026 · DOI

  • This study examines school-based Pre-K (SBPK) versus center-based Pre-K (CBPK) settings, focusing on subsequent access to disability supports, an underexplored area.

    Does Going to School-Based Prekindergarten Predict Access to Disability Services in Elementary School? · 2025 · DOI

  • The results indicated positive trends, suggesting that PIIs have the potential to enhance emotional well-being, family interaction, and parenting domains, while physical well-being and disability-related support remain underexplored across the eligible studies.

    Exploring Family Quality of Life in Parent-Implemented Interventions for Young Children with Disabilities · 2025 · DOI

  • Parents have learned and implemented a variety of strategies with integrity; however, there is limited research regarding the maintenance of skills.

    Behavioral Skills Training and Self-Monitoring to Increase and Maintain the Rate and Quality of Parent-Delivered Praise · 2025 · DOI

Most-cited papers in Family and Disability Support Research

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1,249 open questions have been extracted from the limitations and future-work passages of 9,108 Family and Disability Support Research papers in our 4.5M-paper local library. Each one below links back to the study that raised it, so you can read the original claim in context.

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