Data disaggregation in aging-related health research

The gap

Evidence profile

Sourced from the inline gaps and stated research gap and future-work section of the source papers, classified as general, drawn from work published between 2024 and 2026, spanning 3 journals. Those papers have been cited 5 times in total.

Supporting evidence — 3 representative gaps

• An Exploration of the Characteristics of Adults Being Screened Using an Online Intellectual Disability Screening Tool (2026) · Journal of Policy and Practice in Intellectual Disabilities · doi

  Moving forward Research Further research is required regarding ethnicity and its relation to premature deaths. 82 Moving Forward Care and services Research Further research is required to explore the extent to which conditions other than COVID-19 contribute to excess deaths as more data become available. Improving data collection or utilising other sources of data to increase the breadth of data collected, for example prescriptions and other treatments, and long term conditions, should be explored. We note that due to the recent switch to a new format for collecting LeDeR data, there will be limited data on clinical factors such as long-term health conditions. With the new system in place for data collection, there are more limited data on clinical factors such as long-term health conditions. 80 Impact of COVID-19 vaccination on deaths of people with a learning disability There were limited data on vaccination status – of all of the deaths during 2021, only 304 (11. Although we had limited data on vaccination status, we found that being unvaccinated was strongly associated with deaths due to COVID-19 during 2021.

  generalinline gapsevidence 5/5
  Keywords: deaths conditions limited covid long term there vaccination moving forward further required collection clinical factors
• Reviewing and Advocating for Data Disaggregation in Aging-Related Health Research: NIA Grants and Recommendations for Equity (2025) · The Gerontologist · cited 2× · doi

  There is a lack of data disaggregation in aging-related health research, with only 12 NIA-funded awards from 1985 to 2024 proposing it. The current federal standards for collecting and reporting race and ethnicity data are outdated and do not reflect the changing population. There is a need for more granular ethnic groups for race and ethnicity data collection.

  generalstated research gapevidence 5/5
  Keywords: there lack data disaggregation aging-related health research only
• Unravelling Myths: A Difference-In-Differences Analysis of Post-Vaccination Mortality in Italy During COVID-19 (2024) · Social Indicators Research · cited 3× · doi

  Future studies could extend the analysis timeline from the current 2018-2023 period to include data from 2017-2024, - Further research is needed to analyse at a more sub-provincial level, - The study suggests investigating in-depth many factors, such as individuals' pre-existing health conditions, access to healthcare resources, and regional health policies, - The study suggests identifying localised patterns and disparities of mortality and vaccination

  generalfuture-work sectionevidence 5/5
  Keywords: future studies extend analysis timeline current period include

Questions about this gap