Open research questions in Ethics and Legal Issues in Pediatric Healthcare
93 unresolved questions extracted from the limitations and future-work sections of 1,204 Ethics and Legal Issues in Pediatric Healthcare papers in our library. Each links back to the study that raised it.
What the literature leaves open
Further refinement of the 2023 amendments, - Raising awareness among society about advanced medical directives, or living wills, - Keeping up with the pace of legal decisions with advancing technology and AI
Hidden barriers and ground reality in implementing Supreme Court of India directives to withdraw/withhold life-sustaining medical treatment · 2026 · DOIThe paper identifies the challenge of ascertaining family preferences. It highlights the potential for family members to overstate the extent to which their incapacitous relative has expressed a preference to keep them happy. It discusses the challenge of balancing the consideration of family preferences with the need to prioritize the patient's best interest.
The paper identifies a gap in the consideration of family preferences in best interest decisions. It highlights the need to explore the implications of this approach in less extreme cases.
It asks whether these new mechanisms have achieved what was wanted from them and concludes that, although incremental improvements are warranted, they serve an important function and ought to be allowed to continue to mature.
Medical information should be shared with parents and parental perspectives and priorities in relation to this information should be explored and integrated into the decision-making process.
A rapid review of periviable (22 + 0 to 23 + 6 weeks) counselling practices and the need for a trauma-informed care approach · 2025 · DOIA counselor who accepts abortion provisionally could explore the situation with Janice to deter- mine if referral to another counselor who can be more objective is warranted.
A key strength of this study is its focus on both parental and child perspectives, providing a nuanced understanding of how families engage in and prefer to engage in health communication. The qualitative approach allowed for in-depth exploration of experiences, highlighting speci c areas where communication practices can be improved. The staged approach of asking parents in a survey the same questions and topics that would form the basis of the child interviews likely provided reassurance to parents who were nervous about their child participating in research. Several limitations should be noted. The sample was self-selected, which may have introduced selection bias, as participants with strong views on health communication may have been more likely to participate. Additionally, although a diverse range of geographic locations across NZ and ethnic backgrounds were represented, the study will not fully capture the experiences of children with disabilities or those from non-English speaking backgrounds, warranting further investigation. Because of the nature of the parent survey, in-depth probing was not possible, and the results presented are only a snapshot of children and their parents’ experiences and not a detailed, nuanced understanding.
Communicating health messages to children and families in primary care: a mixed-methods study in Aotearoa New Zealand · 2026 · DOIThe absence of a universally accepted definition of medical futility. The variability in the interpretation and application of medical futility in clinical practice.
Clinical and Ethical Approaches to Medical Futility in End-of-Life Care: A Scoping Review · 2026 · DOIUsing illustrative cases, we highlight salient themes surrounding these challenges that span many tenets of pediatric bioethics, including beneficence (ie, weighing benefits against harms), imposing values to impact shared decision-making, and justice (ie, lack of standardization in processes creating risk for discrimination).
The complexity of the concept of 'safety', - The need to critically examine the constitution of 'safety' as a policy objective, - The challenge of developing alternative imaginations for 'safer' drug policies
Making ‘Safety’ for Children and Young People in Drug Policy: A Critical Analysis of Governing Logics · 2026 · DOIThe meaning and effects of 'safety' are rarely interrogated, - There is a lack of critical examination of how 'safety' is constituted as a policy objective
Making ‘Safety’ for Children and Young People in Drug Policy: A Critical Analysis of Governing Logics · 2026 · DOIThe lack of epistemic lenses in bioethics to conceptualize bioethical problems as consequences of power asymmetries - The need for a new field of research to address the challenges in bioethics
Many hospitals were able to constitute a primary board, but the formation of a secondary board was a challenge. Till date, only few hospitals have effectively implemented EOLC directives.
Hidden barriers and ground reality in implementing Supreme Court of India directives to withdraw/withhold life-sustaining medical treatment · 2026 · DOIFuture research should investigate the implementation of the 'just-in-time consent' approach in clinical practice. Future research should examine the impact of this approach on patient outcomes and experiences.
Rethinking the Burden of Traditional Informed Consent Prior to Prenatal Genetic Screening · 2025 · DOIThe paper identifies a gap in the current approach to informed consent, which is not feasible in many resource-limited contexts. The paper identifies a gap in the support provided to patients and families who receive screen-positive results.
Rethinking the Burden of Traditional Informed Consent Prior to Prenatal Genetic Screening · 2025 · DOIThere is a gap in understanding how principles such as autonomy, consent, and justice can be applied in practice, particularly in complex and uncertain contexts. There is a need for more nuanced understanding of the complexities of relationships, context, and uncertainty in medical ethics. The paper identifies a gap in the recognition of the importance of institutional and cultural pressures in shaping medical ethics.
The need for a revised guiding framework for early childhood research. The importance of addressing current global issues in early childhood research. The need for promoting high ethical standards in early childhood research.
Further study on the development of emotional bonds between infants and caregivers - Examination of the long-term effects of separating infants from gestational carriers
The paper identifies a gap in the justification of the acquisition of a moral right to parent biological children. The paper argues that the Gestationalist View is unconvincing, and that alternative justifications are needed.
The paper identifies the challenge of balancing patient autonomy with the need to protect patients from harm. It highlights the difficulty of assessing decisional capacity in cases involving patients with complex or rare conditions. The paper notes the challenge of navigating the complexities of patient beliefs and values in medical decision-making.
Wish to die trying to live: unwise or incapacitous? The case of University Hospitals Birmingham NHS Foundation Trust versus ‘ST’ · 2024 · DOIThe paper identifies a gap in the current approach to assessing decisional capacity, which can lead to patients being deemed to lack capacity due to their beliefs rather than their ability to make decisions. The gap is particularly significant in cases involving patients with rare or complex conditions. The paper argues that this gap needs to be addressed to ensure that patients' autonomy is respected.
Wish to die trying to live: unwise or incapacitous? The case of University Hospitals Birmingham NHS Foundation Trust versus ‘ST’ · 2024 · DOIThe complexity of the legal and ethical framework in medicine. The need for doctors to understand the legal and ethical framework within which they work. The importance of recognizing patients' autonomy in medical law.
There is a need for a better understanding of the complex interplay between law, ethics, and medicine. The importance of patients' autonomy in medical law is not always recognized.
Future research could explore the role of empathy and understanding in medical practice. Future research could investigate the limitations of reducing complex medical issues to simple answers.
The paper identifies a gap between medical knowledge and the complexities of patients' experiences. The paper highlights the need for empathy and understanding in medical practice.
Most-cited papers in Ethics and Legal Issues in Pediatric Healthcare
- Informed Consent, Parental Permission, and Assent in Pediatric Practice · PEDIATRICS · 1995 · 916 citations
- Informed Consent in Decision-Making in Pediatric Practice · PEDIATRICS · 2016 · 503 citations
- Some limits of informed consent · Journal of Medical Ethics · 2003 · 348 citations
- Ethical and Policy Issues in Genetic Testing and Screening of Children · PEDIATRICS · 2013 · 313 citations
- VULNERABILITY IN RESEARCH AND HEALTH CARE; DESCRIBING THE ELEPHANT IN THE ROOM? · Bioethics · 2008 · 273 citations
- BALANCING THE RIGHT TO HABILITATION WITH THE RIGHT TO PERSONAL LIBERTIES: THE RIGHTS OF PEOPLE WITH DEVELOPMENTAL DISABILITIES TO EAT TOO MANY DOUGHNUTS AND TAKE A NAP · Journal of Applied Behavior Analysis · 1990 · 265 citations
- Competent children? Minors’ consent to health care treatment and research · Social Science & Medicine · 2007 · 245 citations
- Rethinking Informed Consent: The Case for Shared Medical Decision-Making · American Journal of Law & Medicine · 2006 · 234 citations
- Methods and principles in biomedical ethics · Journal of Medical Ethics · 2003 · 222 citations
- The Best-Interests Standard as Threshold, Ideal, and Standard of Reasonableness · The Journal of Medicine and Philosophy A Forum for Bioethics and Philosophy of Medicine · 1997 · 214 citations
Most recent work
- GPs and hospitals to be forced to share patient data as Palantir is granted “unlimited access” to identifiable information · BMJ · 2026
- GPs to withhold “non-essential” patient data as part of collective action · BMJ · 2026
- Beyond Social Conditions: The Moral Determinants of Children's Health · The Journal of Pediatrics · 2026
- Why has the United States of America not Ratified the United Nations Convention on the Rights of the Child? The veto fulcrum as a new health policy analysis framework · medRxiv · 2026
- Making Medical Decisions for Children with Profound Cognitive Disabilities: Pluralism and the Best Interest Standard · The Hastings Center Report · 2026
- Responding to Parental Requests for Potentially Nonbeneficial Treatment in Life-Threatening Situations: Technical Report · PEDIATRICS · 2026
- A Parental Request for an Unproven Treatment for a Rare Pediatric Cancer: Sound Reasons for Not Going Off‐Label · The Hastings Center Report · 2026
- Thoughtfully Resolving Ethical Dilemmas in School Settings · Perspectives of the ASHA Special Interest Groups · 2026
- Implanted Pediatric Brain-Computer Interface Research: Recommendations for the Ethical Design of Clinical Trials · AJOB Neuroscience · 2026
- Hidden barriers and ground reality in implementing Supreme Court of India directives to withdraw/withhold life-sustaining medical treatment · The Indian Journal of Medical Research · 2026
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