Open research questions in Ethics and Legal Issues in Pediatric Healthcare
128 gap statements mined from Ethics and Legal Issues in Pediatric Healthcare papers in our 7.9M-paper local library, which holds 1,518 papers on the topic — drawn mostly from each paper's own stated research gap, future-work, challenge and limitation notes, and its abstract. The ones listed below are a selection still marked open; each names the study that raised it, with a DOI link where the paper has one.
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What the literature leaves open
Ignoring these concerns, there has been a recent call to reinstate the family courts in gender care decision making, based on the perception that there is insufficient information available about alternatives to gender-affirming medical treatment.
Gender CARE beyond the courts: an alternative framework for resolving disputes over gender health care for children and adolescents · 2024 · DOISeveral limitations should be noted. The sample was self-selected, which may have introduced selection bias, as participants with strong views on health communication may have been more likely to participate.
Communicating health messages to children and families in primary care: a mixed-methods study in Aotearoa New Zealand · 2026 · DOIUsing illustrative cases, we highlight salient themes surrounding these challenges that span many tenets of pediatric bioethics, including beneficence (ie, weighing benefits against harms), imposing values to impact shared decision-making, and justice (ie, lack of standardization in processes creating risk for discrimination).
Many hospitals were able to constitute a primary board, but the formation of a secondary board was a challenge. Till date, only few hospitals have effectively implemented EOLC directives.
Hidden barriers and ground reality in implementing Supreme Court of India directives to withdraw/withhold life-sustaining medical treatment · 2026 · DOIIt highlights the potential for family members to overstate the extent to which their incapacitous relative has expressed a preference to keep them happy. It discusses the challenge of balancing the consideration of family preferences with the need to prioritize the patient's best interest.
It highlights the need to explore the implications of this approach in less extreme cases.
The gap is that despite the acceptance of minimal intervention techniques, the current state of restorative care for children in general practice is unacceptable. The gap is that general practitioners may not be able to provide good outcomes for children with extensive caries lesions.
The need for a reexamination of the relationship between racism and economic exploitation in the United States. The ongoing issue of racial disparities in school discipline. The lack of progress in addressing the issue of school pushout and its disproportionate impact on Black students.
There is a significant knowledge gap between the UNCRC's guidance and the reality of current clinical practice. The study identifies a lack of formal training in shared decision-making with children among young European paediatricians. The study highlights the need for harmonisation of age limits across Europe.
Age limits and shared decision-making in paediatric healthcare: an exploratory survey of the Young European Academy of Paediatrics · 2026 · DOIThere is a lack of emphasis on proportionality and clinical judgment in ICU practice. The paper identifies a need for a more balanced approach, considering both technological support and human presence.
There is a need to identify the optimal time window for obtaining MRI for prognostic purposes. The study aims to address this gap by assessing the ability of diffusion MRI to predict outcomes in patients with acute anoxic events.
Continuation or Withdrawal of Life-sustaining Therapies After Acute Anoxic Events in Childhood and Adolescence · 2026 · DOIInterprofessional perspectives on the ethical dilemmas associated with pediatric extracorporeal cardiopulmonary resuscitation (ECPR) are underexplored in the literature.
Ethical Dilemmas in Pediatric Extracorporeal Cardiopulmonary Resuscitation: Qualitative Study of Interprofessional Perspectives · 2026 · DOIFuture research should investigate the implementation of the 'just-in-time consent' approach in clinical practice. Future research should examine the impact of this approach on patient outcomes and experiences.
Rethinking the Burden of Traditional Informed Consent Prior to Prenatal Genetic Screening · 2025 · DOIThe paper identifies a gap in the current approach to informed consent, which is not feasible in many resource-limited contexts. The paper identifies a gap in the support provided to patients and families who receive screen-positive results.
Rethinking the Burden of Traditional Informed Consent Prior to Prenatal Genetic Screening · 2025 · DOIThere is a gap in understanding how principles such as autonomy, consent, and justice can be applied in practice, particularly in complex and uncertain contexts. There is a need for more nuanced understanding of the complexities of relationships, context, and uncertainty in medical ethics.
To advance more comprehensive understanding of the effects of ORA, and to inspire greater attention to, and development of, evidence-informed ethical guidance in this domain of clinical practice, we outline a range of empirical questions regarding adolescents' and parents' experiences that now warrant further study.
Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles · 2025 · DOILong lasting T1DM can be associated with the development of diabetic osteopenia and we are lacking the information to which extent is bone mineral density (BMD) affected in this specific group of individuals.
P-6: BONE MINERAL DENSITY IN SUBJECTS ON WAITING LIST FOR PANCREAS OR ISLETS OF LANGERHANS TRANSPLANTATION DUE TO HYPOGLYCEMIA UNAWARENESS SYNDROME · 2025 · DOIWe offer insights regarding processes for future potential candidates, including for addressing questions such as: Should all clinically similar children be offered GAT proactively or only upon parental request? What are the implications for access/equity? We call for further peer-reviewed scholarship to reanimate this historically stigmatized and understudied treatment.
Growth Attenuation Therapy: Ongoing Ethical and Practical Challenges 20 Years Post Ashley · 2025 · DOILimited and indirect evidence from healthcare mediation and ICU communication-facilitation programs, - Prognostic uncertainty and moral disagreement can conflict or fail to determine a unique answer, - The study does not provide a comprehensive evaluation of the effectiveness of mediation in end-of-life…
Developing training pathways for healthcare mediators, - Exploring formal certification pathways for healthcare mediators, - Investigating the impact of mediation on patient-centered outcomes and clinician…
The complexity of the concept of 'safety', - The need to critically examine the constitution of 'safety' as a policy objective, - The challenge of developing alternative imaginations for 'safer' drug…
Making ‘Safety’ for Children and Young People in Drug Policy: A Critical Analysis of Governing Logics · 2026 · DOIThe meaning and effects of 'safety' are rarely interrogated, - There is a lack of critical examination of how 'safety' is constituted as a policy…
Making ‘Safety’ for Children and Young People in Drug Policy: A Critical Analysis of Governing Logics · 2026 · DOIThe lack of epistemic lenses in bioethics to conceptualize bioethical problems as consequences of power asymmetries - The need for a new field of research to address the challenges…
Further refinement of the 2023 amendments, - Raising awareness among society about advanced medical directives, or living wills, - Keeping up with the pace of legal decisions with advancing technology…
Hidden barriers and ground reality in implementing Supreme Court of India directives to withdraw/withhold life-sustaining medical treatment · 2026 · DOIConsidering a much bigger role for specialists in paediatric dentistry in provision of routine care for children with dental disease - Expansion of specialist training positions within health…
Most-cited papers in Ethics and Legal Issues in Pediatric Healthcare
- Informed Consent, Parental Permission, and Assent in Pediatric Practice · PEDIATRICS · 1995 · 916 citations
- Informed Consent in Decision-Making in Pediatric Practice · PEDIATRICS · 2016 · 503 citations
- Some limits of informed consent · Journal of Medical Ethics · 2003 · 348 citations
- Ethical and Policy Issues in Genetic Testing and Screening of Children · PEDIATRICS · 2013 · 313 citations
- VULNERABILITY IN RESEARCH AND HEALTH CARE; DESCRIBING THE ELEPHANT IN THE ROOM? · Bioethics · 2008 · 273 citations
- BALANCING THE RIGHT TO HABILITATION WITH THE RIGHT TO PERSONAL LIBERTIES: THE RIGHTS OF PEOPLE WITH DEVELOPMENTAL DISABILITIES TO EAT TOO MANY DOUGHNUTS AND TAKE A NAP · Journal of Applied Behavior Analysis · 1990 · 265 citations
- Competent children? Minors’ consent to health care treatment and research · Social Science & Medicine · 2007 · 245 citations
- Rethinking Informed Consent: The Case for Shared Medical Decision-Making · American Journal of Law & Medicine · 2006 · 234 citations
- Methods and principles in biomedical ethics · Journal of Medical Ethics · 2003 · 222 citations
- The Best-Interests Standard as Threshold, Ideal, and Standard of Reasonableness · The Journal of Medicine and Philosophy A Forum for Bioethics and Philosophy of Medicine · 1997 · 214 citations
Most recent work
- GPs and hospitals to be forced to share patient data as Palantir is granted “unlimited access” to identifiable information · BMJ · 2026
- Understanding healthcare autonomy among adolescents and young adults in the United States: a scoping review · Frontiers in Health Services · 2026
- GPs to withhold “non-essential” patient data as part of collective action · BMJ · 2026
- Beyond Social Conditions: The Moral Determinants of Children's Health · The Journal of Pediatrics · 2026
- Euthanasia for mental suffering in young people: a critical global perspective · World Psychiatry · 2026
- Navigating Ethical Tensions in Pediatric Vaccination Following Changes in CDC Guidance · The American Journal of Bioethics · 2026
- Why has the United States of America not Ratified the United Nations Convention on the Rights of the Child? The veto fulcrum as a new health policy analysis framework · medRxiv · 2026
- Making Medical Decisions for Children with Profound Cognitive Disabilities: Pluralism and the Best Interest Standard · The Hastings Center Report · 2026
- Responding to Parental Requests for Potentially Nonbeneficial Treatment in Life-Threatening Situations: Technical Report · PEDIATRICS · 2026
- When facts are not fixed: rethinking shared decision making at the margins of neonatal viability · BMC Medical Ethics · 2026
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