Open research questions in Adolescent and Pediatric Healthcare
41 unresolved questions extracted from the limitations and future-work sections of 854 Adolescent and Pediatric Healthcare papers in our library. Each links back to the study that raised it.
What the literature leaves open
Little is known about whether the presence of coping strategies in young adults (YAs) with sickle cell disease (SCD) is associated with higher transition readiness scores.
Coping Strategies and Social Support for Transition Readiness Among Youth With Sickle Cell Disease · 2026 · DOIBACKGROUND AND OBJECTIVES Individuals with neurologic impairment and technology assistance (NI+TA) have frequent interactions with the health care system, but little is known about their health outcomes following childhood.
Early Adulthood Outcomes Among Individuals With Neurologic Impairment and Technology Assistance · 2026 · DOIABSTRACT Background Little is known about how patients with anorectal malformations (ARMs), their caregivers and healthcare providers perceive and experience transition from pediatric to adult care (transition of care) in low‐ and middle‐income countries.
Transition of Care From Pediatric to Adult Services for Patients With Anorectal Malformations: A Qualitative Study · 2026 · DOIKey strengths of this protocol include the engagement of a nationally distributed, established clinical network (US NPMSC) and a patient-powered research network (iConquerMS) with dedicated POMS infrastructure, enabling access to a rare population that would be difficult…
Adaptation of the Transition Readiness Assessment Questionnaire for Pediatric-Onset Multiple Sclerosis: Protocol for a User-Centered Design Approach · 2026 · DOIAs the field of urology looks towards the future of transitional care, a number of areas should be prioritized. Most fundamentally, out- comes research pertaining to specific pathologies and clinical mod- els is needed. Urologists must also advocate for increased funding for research as well as training opportunities so that future genera- tions of providers both understand transitional urology care and can carry on the work of its improvement. In this drive to improve care, patient populations who lack access to transitional urological care must not be forgotten by exploring the role that digital health and other, de-centralized transitional urology care models can have. Finally, developing comprehensive, digestible transitional urology resources for non-urological care providers including PCPs and the families and caregivers who most frequently interact with patients going through care transition.
There was consensus among EI personnel and pediatricians that telehealth was not an ideal platform for conducting developmental screening and eligibility evaluations for children aged birth to 3 during the pandemic, particularly with new families where there was limited contextual information, and a rapport had not yet been established between the provider and the family.
Experiences of Pediatricians and Part C EI Personnel With Identification, Referral, and Evaluation Amidst COVID-19 · 2025 · DOIExisting community identification and support for young people with an NDD is insufficient to prevent significant numbers developing a level of challenging behaviour that requires secure provision.
Primary neurodevelopmental disorders in detained adolescents: point prevalence and patterns of care · 2022 · DOIA targeted needs assessment of pediatric providers revealed that pediatric-specific CME activities satisfying the state's requirement for pain management and end-of-life issues were lacking.
Creating Effective and Efficient Pediatric-Specific CME Content: More than Just Checking a Box · 2019 · DOIRESULTS: Four main themes regarding the adolescents' experiences of the transfer from paediatric to adult care emerged: (i) limited information about the transition; (ii) transition from frequent, thorough and personal follow-up to a less comprehensive and less personal follow-up; (iii) the importance of being seen as a whole person; (iv) limited expectations of how the health care services were organised.
Transition from paediatric to adult care: a qualitative study of the experiences of young adults with type 1 diabetes · 2019 · DOIObjectives: There is an increasing amount of research being conducted regarding the psychosocial challenges associated with living with congenital heart disease (CHD), however little is known about how these challenges influence the type of psychosocial services patients want.
How do psychosocial challenges associated with living with congenital heart disease translate into treatment interests and preferences? A qualitative approach · 2012 · DOIKEY PRACTITIONER MESSAGE: Little is known about what young people who self-harm find helpful, particularly for looked-after young people.
What do young people who self‐harm find helpful? A comparative study of young people with and without experience of being looked after in care · 2020 · DOIGiven the lack of clear consensus on effective treatment models for adolescent anorexia nervosa in Japan, treatment programs offered to this population vary widely between treatment facilities with limited testing of outcomes.
Introduction of family‐based treatment to Japan with adaptations to optimize the cultural acceptability and advance current traditional treatments of adolescent anorexia nervosa · 2020 · DOILegacy building interventions like plaster hand molds are offered in most children's hospitals, yet little is known about how the concept of legacy is understood and described by pediatric health care providers.
Expectations include the ideal professional composition and profile for comprehensive care of these children and adolescents with CCHCs and safeguards for their rights, with access to a wide variety of social equipment, including but not limited to the health sector.
Recomendações para uma linha de cuidados para crianças e adolescentes com condições crônicas complexas de saúde · 2017 · DOICase studies highlighted how a lack of guidelines and providers' confusion over relevant laws present a challenge in offering confidential care to adolescents.
Privacy and Confidentiality Practices In Adolescent Family Planning Care At Federally Qualified Health Centers · 2016 · DOIHowever, little is known about the pathway of first episode psychosis (FEP) from the perspective of highly adherent adolescents and young adults.
Changing Perceptions of Illness in the Early Course of Psychosis: Psychological Pathways to Self-Determination and Self-Management of Treatment · 2014 · DOILittle is known about the transition experiences of youth with cystic fibrosis (CF) and congenital heart disease (CHD).
‘Down the rabbit hole’: enhancing the transition process for youth with cystic fibrosis and congenital heart disease by re‐imagining the future and time · 2011 · DOIPROBLEM: Little is known about the conditions that must be in place to help adolescent patients and their families gain the confidence needed to continue recovery at home, following the adolescents' hospitalization for anorexia nervosa.
Little is known about the evolving lives of prodigious children, but it often seems to be the case that during adolescence many face a midlife crisis, the outcome of which may determine their chances for later success.
It is unlikely that any collection of individuals can relate in any meaningful way over a period of time without the structure and organization inherent in the group situation imposing a significant limitation upon the free Row of consciousness unique to the individual.
Most-cited papers in Adolescent and Pediatric Healthcare
- Patterns and Costs of Health Care Use of Children With Medical Complexity · PEDIATRICS · 2012 · 589 citations
- Pediatric Self-management: A Framework for Research, Practice, and Policy · PEDIATRICS · 2012 · 477 citations
- DSM-5 Field Trials in the United States and Canada, Part III: Development and Reliability Testing of a Cross-Cutting Symptom Assessment for DSM-5 · American Journal of Psychiatry · 2013 · 398 citations
- Screening for Obesity in Children and Adolescents: US Preventive Services Task Force Recommendation Statement · PEDIATRICS · 2010 · 337 citations
- Transition to adult care: experiences and expectations of adolescents with a chronic illness · Child Care Health and Development · 2008 · 190 citations
- Models of transitional care for young people with complex health needs: a scoping review · Child Care Health and Development · 2011 · 115 citations
- Transitions in the lives of young people with complex healthcare needs · Child Care Health and Development · 2008 · 112 citations
- Gaps in transitional care: what are the perceptions of adolescents, parents and providers? · Child Care Health and Development · 2012 · 91 citations
- Transition to adult services for children and young people with palliative care needs: a systematic review · Archives of Disease in Childhood · 2009 · 71 citations
- Systematic narrative review of pediatric-to-adult care transition models for youth with pediatric-onset chronic conditions · Children and Youth Services Review · 2020 · 59 citations
Most recent work
- ACHD Care Wheel: Stakeholder- and Theory-Driven Framework to Improve Specialized Adult Congenital Heart Disease Care · medRxiv · 2026
- Health Disparities and Ableism in Children With Medical Complexity · Pediatric Annals · 2026
- Measuring transition success from paediatric to adult epilepsy services and its association with seizure outcomes: a UK retrospective cohort study · Archives of Disease in Childhood · 2026
- Youth With Medical Complexity Perceive Disability Discrimination and Disability-Affirming Care: A Qualitative Study · Hospital Pediatrics · 2026
- Bridging Pediatric to Adult Care: A Scoping Review on Transitional Care for Individuals with Congenital Heart Disease Using Data Mining Techniques to Identify Key Topics · Current Cardiology Reports · 2026
- Clinical Models in Transition: Evolving Paradigms in Youth Gender Care · Journal of Sex & Marital Therapy · 2026
- Digital Group Intervention to Boost Resilience in Adolescents With Chronic Medical Conditions: Findings From the RESICO Randomized Controlled Trial · Journal of Adolescent Health · 2026
- Transitional urology: a comprehensive review of the transitional care process · Nature Reviews Urology · 2026
- When Transplant Is No Longer the Answer: An End-of-Life Social Work Narrative in Pediatric Cystic Fibrosis · Journal of Social Work in End-of-Life & Palliative Care · 2026
- Medication self-management during the developmental transition of responsibility among Chinese adolescent liver transplant recipients: a qualitative descriptive study · European Journal of Pediatrics · 2026
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