Open research questions in Family and Patient Care in Intensive Care Units
222 gap statements mined from Family and Patient Care in Intensive Care Units papers in our 7.9M-paper local library, which holds 1,528 papers on the topic — drawn mostly from each paper's own stated research gap, future-work, challenge and limitation notes, and its abstract. The ones listed below are a selection still marked open; each names the study that raised it, with a DOI link where the paper has one.
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What the literature leaves open
We suggest that the organisational and contextual factors that shape relative involvement need to be studied further.
Facilitators and Barriers of Relatives' Involvement in Care of Patients With Acquired Brain Injury or Malignant Brain Tumour: Scoping Review · 2026 · DOIWeaning patients from mechanical ventilation is a complex process that also affects family members, yet their perspectives remain understudied.
Family Members' Experiences of Weaning From Mechanical Ventilation in Intensive Care: A Hermeneutic Phenomenological Study · 2026 · DOIStrengthening professional self-efficacy may support more flexible visitation; longitudinal and intervention studies are warranted.
Beliefs and Attitudes toward Expanded Visitation among Intensive Care Unit Nurses : A Latent Profile Analysis · 2026 · DOIThe study faced challenges in terms of limited resources and infrastructure in the Indian healthcare system. The study had to address ethical and medicolegal concerns raised by clinicians.
Family-led post-ICU discharge intervention for tracheostomized patients in India: Feasibility and formative impact evaluation · 2026 · DOIFuture research should focus on the summative evaluation of the AIIMS ICU Rehabilitation intervention. The study suggests that initial scale-up is best suited for neurotrauma, post-neurosurgical stroke, and hypoxic brain injury dyads.
Family-led post-ICU discharge intervention for tracheostomized patients in India: Feasibility and formative impact evaluation · 2026 · DOIThere is a lack of research on how parents of children with CHD experience and perceive their participation during pre- and postoperative monitoring of vital signs.
Parental participation during children’s vital sign monitoring in connection with surgery for congenital heart disease · 2026 · DOIFuture studies should develop and evaluate intervention programs designed to improve ICU nurses' informative and affiliative communication competencies.
Factors Influencing Care Satisfaction among Family Members of Patients in the Intensive Care Unit · 2026 · DOIThe relationships between family care satisfaction and health literacy, nurse communication style, and hospital physical environment are not well understood. Prior studies have reported inconsistent findings regarding the factors influencing family care satisfaction.
Factors Influencing Care Satisfaction among Family Members of Patients in the Intensive Care Unit · 2026 · DOIStructured training programs for clinical staff should be developed to ensure fidelity and standardization in delivering the nursing snippet-based intervention. Furthermore, periodic booster sessions and continuous access to digital educational content are recommended to sustain long-term parental outcomes.
Evaluation of nursing snippet-based intervention on parents’ burden and self-efficacy towards caring for their children undergoing limb lengthening surgery · 2026 · DOIThe lack of research on the reconfiguration of care responsibilities in Korean society after the COVID-19 pandemic. The need for a future signals analysis approach to identify the major agendas of domestic labor and childcare.
Reconstructing the Division of Care Responsibilities: Analysis of Future Signals using Online News on Domestic Work and Childcare · 2026 · DOIAlthough family resilience helps mitigate these issues, systematic research on experiences and processes of family resilience operating in ICU family members is still lacking.
Family Resilience Among Family Members of Intensive Care Unit Patients: A Qualitative Meta‐Synthesis · 2026 · DOILittle is known about the practice of offering hybrid home visiting services. There is a gap in understanding the effects of hybrid home visiting services on family-level outcomes.
Balancing In-Person and Virtual Home Visits: a Descriptive Analysis of Family-Level Outcomes · 2026 · DOIThe lack of effective strategies to support caregivers during the high-risk transition period. The need for feasible and effective interventions to prevent repeat ED visits and support youth mental health outcomes.
Feasibility of Supportive Telephone Outreach for Caregivers after Pediatric Mental Health Emergencies · 2026 · DOIIt highlights the need to analyze the effects of alternative modes of involvement in intensive care during the COVID-19 pandemic.
Care without co‐presence: Crafting alternative modes of involvement in UK intensive care in times of COVID‐19 · 2026 · DOIFamily presence during resuscitation (FPDR) has been associated with potential emotional benefits for patients’ families; however, its implementation remains controversial due to concerns among healthcare providers.
Healthcare providers’ perspectives on family presence during resuscitation in a Palestinian tertiary hospital · 2026 · DOIAlthough advances in congenital and paediatric cardiac care have improved survival, dysfunctional team dynamics remain an underrecognised contributor to adverse events, inefficiency, clinician distress, and loss of family trust.
Team dysfunction and patient outcomes in paediatric heart care: communication, culture, and system-based interventions in high-risk clinical teams · 2026 · DOIAdditionally, sparse data during the 6-month follow-up period limited our ability to detect postexposure differences in health outcomes based on the EPT request.
Caregivers with poorer health are less likely to engage in an intervention to prepare for their own health care emergency · 2026 · DOIThe study identifies a gap in the implementation of humanization in nursing practice, - The gap is due to various challenges, including lack of resources and structural problems in the healthcare…
A IMPORTÂNCIA DA HUMANIZAÇÃO NO FORTALECIMENTO DO VÍNCULO ENTRE ENFERMAGEM, PACIENTE E FAMÍLIA NO PROCESSO DE CUIDADO · 2026 · DOIThe lack of synthesis of the Escala FACES' contributions to clinical reasoning and nursing interventions - The need for a comprehensive review of the Escala FACES' use in nursing practice…
A ESCALA FACES (I A IV) COMO INSTRUMENTO DE AVALIAÇÃO DO FUNCIONAMENTO FAMILIAR EM ENFERMAGEM: UM PROTOCOLO DE SCOPING REVIEW · 2026 · DOILa falta de atención integral que incluya la salud mental desde el ingreso a urgencias en México. La necesidad de fortalecer la formación de profesionales de la salud sensibilizados en sepsis y salud mental.
Salud mental en sobrevivientes de sepsis: desafíos para su atención en el servicio de urgencias médicas en México · 2026 · DOIThere is a lack of research on the psychological impact of home CPAP or NIV on parents and families - The current research is limited…
Has any research been conducted on the psychological impact on parents and families of children receiving Continuous Positive Airway Pressure or Non-Invasive Ventilation at home? · 2026 · DOINo se encontraron estudios que caractericen los conocimientos, actitudes y experiencias de familiares de pacientes atendidos por intento suicida en el contexto dominicano.
Conocimientos, actitudes y experiencias familiares ante el intento suicida: estudio mixto en un hospital regional dominicano · 2026 · DOIThe study had a limited sample size of 16 specialist family therapists, - The study did not incorporate family perspectives, - The study was limited to a specific setting, the Bouverie…
Refining a Single Session Thinking Approach for Trauma-Affected Families: A Delphi Study · 2026 · DOIFuture research should incorporate family perspectives to further validate and refine the model, - Future research should examine the effectiveness of the adapted SST approach in different…
Refining a Single Session Thinking Approach for Trauma-Affected Families: A Delphi Study · 2026 · DOIThe study identified challenges in peer mentoring across three domains: technical-functional (hospital-related rehabilitation overload, adequacy of matching and timing), emotional (managing rejection, shattering the illusion of complete recovery, appearance-related avoidance), and cognitive (discrepancies in worldview and recognizing family’s role during the acute phase of hospitalization) - some of which have not…
Peer mentorship for physically injured veterans in healthcare settings during ongoing military conflict: benefits and barriers · 2026 · DOI
Most-cited papers in Family and Patient Care in Intensive Care Units
- Critical care and the global burden of critical illness in adults · The Lancet · 2010 · 1,027 citations
- The use of family theory in clinical practice · Comprehensive Psychiatry · 1966 · 596 citations
- Parent Care as a Normative Family Stress · The Gerontologist · 1985 · 560 citations
- Empirical Development Of a Middle Range Theory of Caring · Nursing Research · 1991 · 449 citations
- Improving the Quality of End-of-Life Care in the Pediatric Intensive Care Unit: Parents' Priorities and Recommendations · PEDIATRICS · 2006 · 365 citations
- Care = organisation + physical labour + emotional labour · Sociology of Health & Illness · 1992 · 349 citations
- Family participation during resuscitation: An option · Annals of Emergency Medicine · 1987 · 342 citations
- Daily Living With Distress and Enrichment: The Moral Experience of Families With Ventilator-Assisted Children at Home · PEDIATRICS · 2006 · 333 citations
- Consequences of visiting restrictions during the COVID‐19 pandemic: An integrative review · International Journal of Nursing Studies · 2021 · 322 citations
- Patient- and Family-Centered Care Coordination: A Framework for Integrating Care for Children and Youth Across Multiple Systems · PEDIATRICS · 2014 · 314 citations
Most recent work
- Family engagement in intensive care: perceptions, barriers, and facilitators among nurses in Saudi Arabia · BMC Health Services Research · 2026
- Can I Get a Witness? The Ethical Dimensions of Family Presence in Patient Suffering · The Hastings Center Report · 2026
- Parents' Perspectives of Child‐Centred Care: A Qualitative Study With Parents After Paediatric Intensive Care Units Discharge · Nursing in Critical Care · 2026
- Family-centred care interventions in paediatric intensive care units: a scoping review · Intensive and Critical Care Nursing · 2026
- Communication in the intensive care unit: experiences and perspectives of critical care nurses in China · Intensive and Critical Care Nursing · 2026
- Legacy at the Bedside: A Nurse-Led Evidence-Based Framework for Memory-Making in the Pediatric Intensive Care Unit · Journal of Hospice & Palliative Nursing · 2026
- Response Paper: A Critical Review of Sprengholz's Public Preferences Regarding Slow Codes in Critical Care · Bioethics · 2026
- A quality improvement initiative to increase family engagement and reduce disparities in visitation via telehealth in a level III neonatal intensive care unit · Journal of Perinatology · 2026
- Key Insights From the International ICU Diary Conference 2025 · Nursing in Critical Care · 2026
- Adolescent relatives’ experiences and perceptions of everyday life when a family member is critically ill and admitted to an ICU and in the aftermath: A qualitative study · Intensive and Critical Care Nursing · 2026
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