Open research questions in Mental Health and Patient Involvement

What the literature leaves open

• For example, there is limited evidence for communication partner training (CPT) for this client group, despite research on its effectiveness more generally.

  Speech and Language Therapists’ Views and Experiences of Working With People With Wernicke's Aphasia: A Qualitative Interview Study · 2026 · DOI

• ObjectivesDespite their higher risk of stroke and known inequities in post-stroke outcomes, research amongst minoritised ethnic communities who have experienced stroke is scarce.

  Rethinking supported self-management for Black people living with stroke: the relevance of social, cultural and historical racial context · 2026 · DOI

• Future research should address patient perspectives and satisfaction with hybrid care. Still, further research is needed that examines the quality of virtual and hybrid pri- mary care–based mental healthcare and how best to tailor these care pathways (e. Third, this study focused specifically on the treatment of depression as the most common and exemplary psychiat- ric condition but may not be generalizable to other mental health conditions encountered in primary care.

  Optimization of Virtual and In-Person Care Coordination Between VA Primary Care and Mental Health Teams: A Qualitative Study · 2026 · DOI

• Based on the users' perceptions, the Adult Literacy Centre should incorporate African cultural norms and values. Literature confirms the benefits of culturally relevant stories, which expand perspectives on ethnic roots and traditions during bibliotherapy (Joubert & Hay, 2019:1). These approaches enhance appreciation of African culture and support self- awareness development (Tukhareli, 2011:7). Future studies should include more representative samples, particularly black males in mental healthcare facilities, to better understand adult literacy inclinations. Further research should explore ways to improve expressive language skills, including MAKATON sign language and alternative and augmentative communication (AAC) strategies, which can be integrated into bibliotherapy. AAC techniques show promise in SA by enhancing language comprehension and replacing speech to help users express healthcare needs more effectively. Makerspaces also offer potential as creative environments for developing expressive skills, building self-worth, and supporting entrepreneurship. Finally, research should explore models for recording the impact of community engagement projects on real-life community challenges, advancing citizen science practices.

  Fostering sustainable university-community partnerships: bibliotherapy's role in bridging disconnection and reconnection in public mental healthcare · 2026 · DOI

• This study provides a novel insight on the early stages of recovery as participants were recruited within 12 months of injury. This contrasts with previous studies that have often focused on longer-term experiences, with participants recalling events years after ATR [12]. By focusing on this earlier timeframe, the study captures more immediate perceptions of the initial injury and recovery. The percentage of male participants was consistent with previous ATR investigations in the UK and the sample con- sisted of range of ethnicities [9]. The age of participants was higher than in previous qualitative investigations that focused on return to sport post ATR [12,31]. This difference likely reflects the decision in the present study not to exclude older adults, who are experiencing an increasing incidence of ATR [33]. As the average age of ATR rises, it is essential that the older cohort perspectives are understood and reflected in clinical decision-making. PLOS One | https://doi.org/10.1371/journal.pone.0352761 June 29, 2026 10 / 13 Participants were recruited from a single NHS ATR clinic, which may limit the transferability of findings to other healthcare settings, particularly those outside the UK or with different immobilisation protocols. Furthermore, the study included only individuals treated non-surgically and may not represent surgically managed patients. Future research could compare experiences across treatment approaches to understand how clinical pathways influence recovery experiences. Long term functional deficits have been reported following ATR [4–6]. Due to the qualitative nature of this study, the relationship between reported fear of re-injury and objective measures of Achilles performance are unknown. Triangulating qualitative findings with functional outcomes in future studies would provide an understanding of how patient experience aligns with functional capacity.

  The experience of individuals following non-surgical management of Achilles tendon rupture in the United Kingdom – a qualitative study · 2026 · DOI

• This analysis relied on publicly available documentation, which may not fully capture informal deliberations, unpub- lished consultations, or internal decision-making. Formal frameworks do not guarantee actual adherence, and trans- parency documentation should be interpreted as a descrip- tion of institutional design rather than a direct measure of practice. Similarly, coding participation from documented structures captures formal positioning but not the depth of influence actually exercised, which may vary considerably within a single category. For example, two systems coded as representation may differ markedly in how much weight lived-experience members carry in practice. The analysis focused on governance structures rather than implementation fidelity or outcomes, does not assess whether differences in guideline development translate into improved services, and does not evaluate the quality or effectiveness of autistic participation where it is docu- mented. Although informal consultations supported docu- ment interpretation, they were not designed to represent the full diversity of autistic people, family members, clini- cians, policymakers, or service users across the included countries, and formally documented interviews could reveal governance dynamics not captured in published materials. Finally, the analysis is limited to six countries and does not capture the full range of guideline governance mod- els internationally. These countries are all relatively well- resourced and the analysis does not address low- and middle-income countries, where guideline infrastructure, resource constraints, and reliance on international guidance may differ substantially. Extending this governance lens to those settings is an important direction for future compara- tive research.

  Who Shapes National Autism Guidance? A Cross-National Comparison of Autism Guideline Development, Representation, and Implementation · 2026 · DOI

• This study provides a descriptive foundation for several lines of future inquiry. An important next step is to examine whether and how clinicians, autistic individuals, and fami- lies perceive changes in access to care, quality of services, or coordination across sectors following the introduction or revision of national autism guidelines, and whether these perceptions differ across governance models. Survey-based research could assess whether more inclusive processes are associated with greater professional trust, legitimacy, or implementation fidelity. Such designs could link specific governance features, such as co-production roles or defined currency mechanisms, to measurable implementation indi- cators. These indicators could include diagnostic wait times, regional variation in access, clinician adherence, or family- reported service coordination, using cross-jurisdiction com- parisons or pre/post designs around guideline introduction or revision. Methodological work is also needed to operationalize models of participation (consultation, representation, co- production) in ways that are comparable across guideline systems. The present analysis relied on publicly docu- mented governance features, but future studies could incor- porate interviews with guideline development participants, autistic contributors, and implementation actors to assess the quality and influence of participation beyond what docu- ments capture. Such work should attend to whose voices are included within participatory processes, since participa- tion mechanisms often privilege articulate, policy-engaged individuals, raising concerns about the representation of non-speaking autistic people and those with co-occurring intellectual disabilities. Finally, future comparative work could examine whether governance structures influence the scope of clinical ques- tions that guidelines prioritize, including the distinction between universal screening, surveillance-based identifica- tion, and recognition-referral pathways discussed above. 1 3Journal of Autism and Developmental Disorders Conclusion Consent to Participate Not applicable. National autism guidance increasingly functions as a gov- ernance instrument whose meaning and reach cannot be assessed through clinical content alone. This cross-national analysis demonstrates that although countries produce guid- ance with substantially convergent clinical content, the institutional architectures through which that guidance is commissioned, developed, and implemented differ funda- mentally in how authority is distributed, how lived-expe- rience perspectives are incorporated, and how guidance is connected to service delivery. Whether these differences translate into meaningful variation in clinical practice or lived experiences remains an open empirical question, and this study does not claim that more inclusive processes necessarily produce better guidelines. However, documenting how participation and authority are structured is a necessary precursor to even- tually answering that question. As the practice of autism guideline development expands internationally, attention to governance arrangements may help jurisdictions make more deliberate choices about whether to produce additional guidelines, strengthen implementation infrastructure, or develop practical, family-facing resources that existing evi- dence suggests are urgently needed. Ultimately, understand- ing how autism guidance is both developed and governed, as well as whose voices are influencing that development and governance, is essential groundwork for ensuring that national guidelines serve not only as technical summaries of evidence but as instruments that meaningfully improve care for autistic people and their families.

  Who Shapes National Autism Guidance? A Cross-National Comparison of Autism Guideline Development, Representation, and Implementation · 2026 · DOI

• To our knowledge, this is the first study in Romania to explore the role of NGOs in the work reintegration of people with a diagnosis of chronic illness. The perspective of NGOs is valuable, as they play a crucial role in helping individuals adapt to difficult situations and are innovative in their approaches. We gathered insights from NGOs with diverse profiles and varying experiences in the field. Unlike previous studies, focusing on NGOs' views alone and not in conjunction with other specialists, is another strength of this study. The results offer a comprehensive understanding of the main challenges NGOs involved in this field face. Another strength is that, in a context where awareness about work (re)integration challenges is low, our study has encouraged NGO representatives to reflect on this topic and become more motivated to be further involved. However, a limitation of the study is the relatively small number of NGOs involved, which limits the transferability of the conclusions and the relevance of the research to countries with similar health systems and policies. IMPLICATIONS FOR POLICY, PRACTICE AND RESEARCH Based on these findings, it is important to consider an integrated and coordinated national legal framework to clearly regulate the role of NGOs in the work (re)integration of PwCD. This framework could significantly contribute to harnessing the potential of this stakeholder in this process and could be a means to secure constant and predictable funding. Currently, NGOs’ involvement is informal and not fully valued. Providing NGOs’ with a formal role in policy could improve the effectiveness of their efforts by professionalizing their services and fostering increased collaboration across different sectors. More studies are needed to explore the involvement of NGOs along with the other stakeholders shaping this process, and how this involvement varies across countries with different policy frameworks for work reintegration and varying levels of resources.

  Work (Re)integration Following a Chronic Illness Diagnosis in Romania: What Role Do Nongovernmental Organizations Play in the Process? · 2026 · DOI

• Grounded in survivors’ lived experiences, the study’s findings support addressing social connection from an integrated health protection and health promotion perspective, as both an individual and organizational concern (Punnett et al., 2020). Survivors’ emphasis on the “outer circle” (e.g., acquaintances, coworkers) underscores that work-related interventions cannot rely solely on survivor self-management and coping, but must also address how workplace norms, illness-related discomfort, and and belonging at work. communication reintegration practices shape This study is strengthened by its use of the structured, evidencebased IDEAS participatory framework (Robertson et al., 2015). Although no evaluation of intervention efficacy or feasibility outcomes is presented, the design team’s intervention options were developed and prioritized using IDEAS to deliberately incorporate key determinants of successful implementation, feasibility, perceived including appropriateness, acceptability, effectiveness, broad reach, fit with available resources, and compatibility with user needs (Chaudoir et al., 2013; Dugan and Punnett, 2017). Consistent with diffusion of innovations theory, interventions with these built-in attributes during early design phases strongly influence whether they are later adopted and sustained in real-world settings, often independent of formal efficacy evidence (Rogers, 2003). the usual committee. Although However, future research should address the absence of a steering employer-based committee was not feasible in this adapted IDEAS process, a small advisory group could be assembled to support intervention development (e.g., content accuracy, platform design) and advise on feasibility, reach, and implementation. This group could also help identify potential barriers, implementation opportunities, and pathways for dissemination across diverse settings. The advisory group could include a mix of relevant partners from both workplace and survivorship contexts such as employer representatives (e.g., human resources or wellness leaders), a cancer advocacy organization (e.g., American Cancer Society), a clinical or survivorship expert (e.g., oncology social worker), and a digital/ technology expert. Several other limitations warrant consideration. Intervention efficacy was not evaluated, and future research should assess intervention impacts on outcomes such as loneliness, belonging, work engagement, absenteeism, retention, and organizational support. The lack of involvement from employers and healthcare providers limits conclusions regarding implementation feasibility in workplace and clinical settings.

  Employed cancer survivors develop a peer-support intervention to improve social connections: a participatory design study · 2026 · DOI

• Coordina- tion between these sectors remains limited and largely informal, with no standardized case management system or shared information infrastruc- ture. Coordination roles remain insufficiently formalized, information exchange between sec- tors is limited, social workers are not consistently positioned as case man- agers, and funding structures are largely sector-specific.

  Integrated Health and Social Care for Substance Use Disorders: The Role of Social Work in Multidisciplinary and Interdisciplinary Models · 2026 · DOI

• Future research should focus on developing structured interventions that facilitate this transition, ensuring that the potential of peer support is fully realized within mental healthcare institutions. However, as our analysis suggests, training alone is insufficient if it does not actively engage professionals in a reflective process about their own attitudes. Accordingly, the question of the historical or institutional origins of the medical model’s hierarchy cannot be addressed in depth within the scope of this paper, although it undoubtedly warrants further attention in this context.

  Disease model as attitude: a doxastic framework and the challenges of peer support work in mental health · 2026 · DOI

• What appears as ‘commu- nity spirit’ is simultaneously a response to structural gaps in systems that rely on unpaid and under-recognised care labour (Harcourt 2026).

  Patient advocacy as everyday activism: an ethnographic case study of local support groups in Northern England · 2026 · DOI

• ABSTRACT Introduction/Aims Multidisciplinary clinics (MDCs) are the standard of care for amyotrophic lateral sclerosis (ALS), yet little is known about how well they meet patient and care partner needs, or how stakeholder engagement can be used to strengthen these services.

  Improving <scp>ALS</scp> Clinic Care Through Experience‐Based Co‐Design: A Participatory Action Research Study · 2026 · DOI

• Social workers are equipped in their professional training to work collaboratively; this foundational skill positions them to facilitate and build multi-stakeholder partnerships aimed at addressing the psychosocial realities of women living with HTN. Although some social workers operate with limited resources, they still have the responsibility to reach women in marginalised areas to ensure they get the necessary psychosocial support. In practice, this can be achieved through creative, innovative, and context-appropriate strategies to extend service delivery beyond traditional offices. For example, community- friendly online platforms and mobile outreach teams may be considered to offer practical ways to engage women who seldom have access to mainstream care. Today, the growing influence of the Fourth Industrial Revolution prompts healthcare professionals, including social workers, to reconsider how interventions are delivered. Whilst acknowledging that technology should not replace face-to-face contact, it can support more accessible patient-centred psychosocial interventions. For instance, a "mobile phone application reminder" could be designed for low data usage to remind patients to Shirindi et al./WOMEN & HYPERTENSION 899 take their medication and their next check-up or social work visit. Similarly, virtual methods, such as Skype or other low-bandwidth online tools, may help social workers provide emotional support to individuals in distress, especially when physical visits are not possible. To strengthen collaborations and partnerships among stakeholders, structured communication systems are essential. Virtual or in-person case conferences are necessary to monitor teams’ efforts for each patient’s case. Such meetings help ensure accountability and clarify gaps that may require additional support. In addition to regular case discussions, social workers may, in collaboration with relevant stakeholders, strengthen the referral system by developing a referral-tracking device, such as a referral spreadsheet, to monitor referred patients. Disseminating information remains another need for consideration. Some women in rural areas find it difficult to navigate the social and health care services because information is presented in an unfamiliar language. A comprehensive resource booklet serving as a guide detailing emergency contacts and available health and social services should be developed in print, in various key indigenous languages understood by patients. Beyond the health professions, wider intersectoral collaboration is essential. Collaborations with community-based organisations, faith-based organisations, non- governmental organisations, the business sector, and local government structures can strengthen community responses to hypertension and improve the quality of psychosocial support. Finally, future research should prioritise mixed-method designs to examine the roles of various stakeholders in supporting individuals with hypertension. Placing stakeholder collaboration at the centre of such research will generate findings that are practical and responsive to community needs.

  Stakeholder Collaboration to Address the Psychosocial Needs of Women Living With Hypertension · 2026 · DOI

• services during the COVID-19 pandemic? ● Can you describe the process of implementing digital mental health services in your organization? ● What is your perspective on the development of digital mental health services in Indonesia during the pandemic? ● What strategies have you found effective in integrating these services into your existing workflows? ● How would you assess the quality of digital mental health services? ● Can you describe the main challenges you have faced when providing digital services during the COVID-19 pandemic? ● How do these challenges impact the effectiveness of the services provided? ● How have you addressed or overcome these barriers? ● In your opinion, what innovations are needed to improve the quality of digital mental health services going forward? ● Based on your experience and knowledge, what are your main recommendations for improving the implementation and quality of digital mental health services in Indonesia?

  The Unseen Complexities of Digital Mental Health Services in Indonesia (COVID-19 Era): A Qualitative Study · 2026 · DOI

• The study has several limitations, including potential sample bias due to its small size and 167 focus on the Indonesian population, which restricts the generalizability of the findings. Recruitment bias may have occurred because the primary researcher was familiar with some participants, potentially affecting objectivity. Technical challenges such as poor internet connectivity, software glitches, and audio-visual issues also disrupted interviews and data collection. Additionally, since the data were primarily analyzed by a single researcher, interpretation bias cannot be fully ruled out despite supervisory review. The study’s participants were mainly urban and affiliated with formal organizations, leading to underrepresentation of rural experiences; however, the results align with findings from LMICs and similar research, suggesting broader applicability. Future studies should include rural populations or clients to provide a more comprehensive perspective.

  The Unseen Complexities of Digital Mental Health Services in Indonesia (COVID-19 Era): A Qualitative Study · 2026 · DOI

• Future work should examine the delivery of recovery‑oriented education across multiple residency programs and training years to better understand its generalizability and impact. Outcomes were measured immediately following the session, and long‑term retention or behavioral change could not be assessed.

  Recovery-Oriented Education: The Impact of Visiting a Clubhouse on Psychiatry Residents · 2026 · DOI

• This study focused on individual level influences on young people’s involvement in mental health research rather than structural inequalities, such as racism and poverty, which affect mental health [65] and may also hinder involvement [66]. In addition, as a UK-based study, findings may not be as relevant to other countries or cultural contexts where approaches to young people’s involvement are either more or less well developed. Relat- edly, although the young people participating in the study were diverse in many respects, all participants were flu- ent English speakers, limiting insights into language bar- riers. Finally, although a number of participants had no previous experience of being involved in mental health research they were, nevertheless a group of generally engaged young people, for example through their mem- bership of local youth networks or subscriptions to men- tal health newsletters. Whilst significant outreach efforts were made to recruit as diverse group of young people as possible, the recruitment strategy may have meant that those who are most hard to reach, and accordingly might experience the most significant barriers, may not have been included and therefore their views are absent.

  “To make a positive difference”: diverse youth perspectives on getting involved in mental health research · 2026 · DOI

• alongside it’s use is necessary to ensure that cultural identity is rightfully cen- tred as a positive force in people’s lives Despite the evolution of language and numerous perspec- tives on this matter, our primary goal is to encourage a reflec- tive and intentional approach to these complex issues. After deliberation, we have chosen to use the term "culturally and racially marginalized" (CARM) to refer to the peer workers who are the focus of this research. We acknowledge their experiences within the broader context of marginalization. However, we do this with a caveat: although we address a subset of challenges in this paper, the vast and boundless strengths of cultural backgrounds cannot be understated and should, alongside meaningful lived-experience representa- tion, drive our work. Author Contribution L.B., C.B. and N.H. contributed to the study con- ception and design. Data collection was performed by L.B. Data analy- 1 3Administration and Policy in Mental Health and Mental Health Services Research sis was performed by N.H., L.B., C.B., J.P.E., C.M., H.R. and A.I. The first draft of the manuscript was written by N.H. and A.I. All authors commented on previous versions of the manuscript. All authors read and approved the final manuscript. Funding Open Access funding enabled and organized by CAUL and its Member Institutions Data Availability The data that support the findings of this study are not openly available due to reasons of sensitivity and are available from the corresponding author upon reasonable request. Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit h t t p : / / c r e a t i v e c o m m o n s . o r g / l i c e n s e s / b y / 4 . 0 / .

  Exploring Issues of Culture in Peer Work – A Qualitative Study · 2026 · DOI

• A limitation of this evaluation is that it was conducted internally by employees of ARC NWC, the funder of the CoREN, which may increase the risk of a favourable bias towards the network. Convenience sampling, recruit- ment through existing CoREN relationships and partner networks, and voluntary uptake may also have favoured participation by individuals who were already engaged with, and positively disposed towards, the CoREN. Another limitation is that the findings may be context- specific to North West England, and generalisability beyond the region may be limited. Additionally, to effec- tively capture downstream impacts of the CoREN, more sustained and longitudinal evaluation methods might have been more effective. For example, the CoREN logic model anticipates a quantifiable increase in public-led research projects, and thus developing a feasible indica- tor and routine monitoring approach for this outcome would be a useful component of future longitudinal eval- uation. In the future, this could be combined with social network analysis to map the connections formed through the network and their contributions to the broader research ecosystem. The sample in this evaluation presented both strengths and challenges. Including most of the Leadership Group in the interviews allowed for a rich understanding of their perspective. However, we had limited participation from ARC NWC research staff, which may have con- strained the evaluation’s ability to fully capture the scope of research work undertaken as a result of the CoREN’s activities. This is significant because co-production depends on sustained involvement from both public con- tributors and researchers. With only partial input from research staff, our account of the academic side of the partnership is incomplete. We also did not collect participant demographic data or organisational identifiers in order to protect confiden- tiality in a small network. This limited our ability to assess the diversity of the sample, which is important given the CoREN’s aim to include marginalised groups and address health inequalities. It also limited our ability to examine how intersecting structural forces (for example gender, race, class, disability, migration status, and language) shaped participation in the CoREN and in this evalua- tion. While the CoREN aims, in broad terms, to address structural inequality by increasing inclusion in research, our methods did not allow us to examine systematically who was included or excluded, and why. In addition, because our analysis focused on relational dynamics and did not assess the influence of structural conditions (for example socio-economic position or experiences of dis- crimination), our conclusions about inclusion are lim- ited to the relational and organisational level. Addressing macro-structural mechanisms of exclusion and power would require other data and methods and is an impor- tant priority for future evaluation. Key strengths of this evaluation are that it has brought to light successes and areas for improvement, providing practical guidance for the CoREN’s future development. It has also raised the profile of an innovative and sus- tained regional model of co-production and introduced some principles that will be of use to others leading or evaluating other such initiatives. Lastly, its theory- informed approach shows how the CoREN’s processes relate to concepts such as relational evaluation, delibera- tive democracy, structural and power constraints, and the diffuse, mediated impacts of facilitative co-produc- tion activities. In doing so, it presents an adaptable theo- retical framework that can inform future evaluations of other sustained collaborative research networks.

  Democratising health and social care research through long-term public involvement and engagement: a qualitative process evaluation of the Community Research and Engagement Network (CoREN) · 2026 · DOI

• Future research should consider incor- porating individual interviews alongside focus groups to enable deeper exploration of participants’ views and should involve a more diverse sample, including partici- pants with a wider range of health conditions, as well as researchers, healthcare professionals, and members of the broader public, to inform the development of PPIE strategies relevant across different contexts.

  Patient and public perceptions of involvement and engagement in healthcare research: a descriptive exploratory qualitative study in Hong Kong · 2026 · DOI

• This study was a single-site pilot with a small sample size (n = 18), which limits the generalizability of the findings. There was no control group for comparison of those who engaged in the intervention and those who did not. Low response rates for T2 (post intervention) staff and client Enhanced (RSA) surveys may have been due to a short follow-up window, which could have introduced selection bias. Furthermore, the reliance on a single in-depth PSS alumni discussion and leader/staff reflections for qualita- tive depth suggests that future evaluations should include broader focus groups to reduce the potential for social desir- ability bias.

  Peer Employment Learning Center (PELC) Pilot Project: From Mental Patient to Peer Support Provider · 2026 · DOI

• The results present insights into the PeKa B40 program across four domains: Understanding, highlighting limited knowledge and factors like doctors’ guidance; Experience, noting differences in diagnoses during the PeKa B40 program; Benefits, emphasizing early detection of diseases with reasonable charges; and Perception, highlighting the recommendation of the programs to other persons and negative perception from certain individuals towards the health screening program.

  The Understanding and Perceptions of PeKa B40 Health Service: A Qualitative Study in Felda Lubuk Merbau · 2024 · DOI

• However, the “social nurse” function was greatly valued in both sectors due to a mediating role, since healthcare professionals in both sectors experienced lack of organisational structures supporting collaborative network, perceived temporal barriers, limited knowledge exchange and differences in approaches to patients.

  Between acute medicine and municipal alcohol treatment: Cross-sectoral collaborations regarding patients with alcohol problems · 2024 · DOI

• In 2023, the White House included the implementation and improvement of assisted outpatient treatment in a list of under-researched strategies to support recovery and long-term treatment engagement for people with serious mental illness.

  Critical Gaps in Assisted Outpatient Treatment Research in the United States · 2024 · DOI

Most-cited papers in Mental Health and Patient Involvement

• Belonging: a review of conceptual issues, an integrative framework, and directions for future research · Australian Journal of Psychology · 2021 · 737 citations
• Who talks? The social psychology of illness support groups. · American Psychologist · 2000 · 472 citations
• Stigma of visible and invisible chronic conditions · Journal of Advanced Nursing · 2000 · 285 citations
• Qualitative and Mixed Methods in Mental Health Services and Implementation Research · Journal of Clinical Child & Adolescent Psychology · 2014 · 284 citations
• Components of Comprehensive and Effective Transitional Care · Journal of the American Geriatrics Society · 2017 · 202 citations
• Social support and recovery from mental health problems: <i>a scoping review</i> · Nordic Social Work Research · 2021 · 156 citations
• Processes of disengagement and engagement in assertive outreach patients: qualitative study · The British Journal of Psychiatry · 2005 · 153 citations
• The benefits and challenges of established peer support programmes for patients, informal caregivers, and healthcare providers · Family Practice · 2022 · 143 citations
• THERAPEUTIC GROUPS ONLINE: THE GOOD, THE BAD, AND THE UNKNOWN · Issues in Mental Health Nursing · 2000 · 122 citations
• Patient participation in mental health care – perspectives of healthcare professionals: an integrative review · Scandinavian Journal of Caring Sciences · 2017 · 119 citations

Most recent work

• Why Should People with Lived Experience Be Included in the <i>DSM</i> Revision Process? · The Hastings Center Report · 2026
• The Competencies and Implementation of Peer Support Interventions for People with Serious Mental Health Challenges: A Systematic Review · Harvard Review of Psychiatry · 2026
• Scaling Peer Support Programs to Drive Individual and Organizational Well-Being · Psychiatric Annals · 2026
• Using PBS in context: an audit of a PBS pathway highlights strengths and challenges · Tizard Learning Disability Review · 2026
• Reducing tokenism in patient and public involvement by integrating the Gothenburg person-centred care framework, relational bridges and impact log – a co-produced position paper · Research Involvement and Engagement · 2026
• Empowering young adults in disadvantaged communities to promote mental health among their peers · South African Journal of Psychology · 2026
• Understanding barriers and facilitators to women’s recovery from opioid use disorder: a focus group study · Journal of Social Work Practice in the Addictions · 2026
• A rapid evaluation of the reporting and publishing practices of patient and public involvement and engagement in health research within a UK university institute · Research Involvement and Engagement · 2026
• Turning the tables: creating space for lived experience leadership in research · Research Involvement and Engagement · 2026
• Strategies for engaging individuals with traumatic brain injury and cognitive impairment in virtual research settings · Research Involvement and Engagement · 2026

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