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Open research questions in Mental Health and Patient Involvement

646 gap statements mined from Mental Health and Patient Involvement papers in our 7.9M-paper local library, which holds 5,301 papers on the topic — drawn mostly from each paper's own stated research gap, future-work, challenge and limitation notes, and its abstract. The ones listed below are a selection still marked open; each names the study that raised it, with a DOI link where the paper has one.

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What the literature leaves open

  • The study notes the challenge of balancing the need for power sharing with the dominance of biomedical models of mental distress.

    A Critical History of Co‐Production in the Design and Delivery of UK Mental Health Services · 2026 · DOI

  • The paper identifies a gap in the understanding of how the concept of co-production has developed historically and its impact on mental health services. There is a lack of critical examination of the extent to which the original egalitarian promise of co-production has been realized.

    A Critical History of Co‐Production in the Design and Delivery of UK Mental Health Services · 2026 · DOI

  • Co-design is increasingly used in chronic pain research; however, terminology remains inconsistent, guidance is lacking, and most research is concentrated in high-income countries.

    Terminology and core components of co-design intervention in chronic pain management: An international Delphi study · 2026 · DOI

  • While this approach is gaining ground in the social domain, little is known about its impact on the experts themselves.

    How participation in health promotion affects peer-experts and experts-by-experience from vulnerable neighborhoods: a case study from The Netherlands · 2026 · DOI

  • Patient engagement (PE) in research may address these gaps, but meaningful engagement with representative populations of diverse race, language, and socioeconomic status is lacking.

    Optimizing Patient Partner Engagement and Integration in Research: Recommendations From a Qualitative Study of Focus Groups With Patient Partners Living With Type 1 or Type 2 Diabetes · 2025 · DOI

  • Future research should focus on overcoming identified challenges and improving reporting standards to enhance the transparency and reliability of co-design studies.

    Co-design of family interventions in cancer care: A scoping review to assess key methods and processes · 2025 · DOI

  • The barriers and challenges observed were: lack of skills, training, and education; insufficient information regarding roles and responsibilities; lack of logistical or financial support; and lack of integrated strategy.

    OP64 Exploring The Environment And Capacity Of South African Citizen Actors To Contribute To Health Technology Assessment Processes, Policy Development, And Institutionalization · 2025 · DOI

  • Limited evidence regarding non-pharmacological fatigue interventions for CYP with MSK conditions was found and most interventions were based on physical activity.

    OA34 The contributions of Patient and Public Involvement and Engagement groups to the conduct of a scoping review of non-pharmacological interventions for reducing fatigue in children and young people with musculoskeletal conditions · 2025 · DOI

  • The field is lacking a consensus on good practices, leading to divergent processes, methods, and evaluation of patient involvement.

    Stakeholder perspectives on the current status and potential barriers of patient involvement in health technology assessment (HTA) across Europe · 2024 · DOI

  • Submissions regarding the medications used to treat rare diseases and those with limited research evidence were considered particularly valuable.

    Experiences of patient organizations’ involvement in medicine appraisal and reimbursement processes in Finland – a qualitative study · 2024 · DOI

  • There is currently a gap in the literature regarding the preparation of personal safety tools in non-acute mental health settings.

    Utilising co‐design to develop a lived experience informed personal safety tool within a mental health community rehabilitation setting · 2024 · DOI

  • However, little is known about how peer support specialists navigate client SU in CSC.

    Substance use approaches among peer support specialists in community mental health early psychosis programs. · 2024 · DOI

  • One challenge is the complexity of human experience and the need for a holistic approach to health. Another challenge is the lack of studies on the impact of community-based cultural interventions on identity reconstruction. The study also faces the challenge of evaluating the methodological quality of heterogeneous studies using the MMAT.

    Cultural Heritage as a Health Asset: A Systematic Review of Narrative Identity Reconstruction in Individuals with Mental Distress · 2026 · DOI

  • The study identifies a gap in the understanding of how cultural heritage mediation can support the recovery of individuals with mental distress. It highlights the need for recognizing cultural heritage as a health asset. The research gap also includes the lack of studies on the impact of community-based cultural interventions on identity reconstruction.

    Cultural Heritage as a Health Asset: A Systematic Review of Narrative Identity Reconstruction in Individuals with Mental Distress · 2026 · DOI

  • Serious mental health challenges can impair an individual's ability to function, leading to significant disruption in daily life. Individuals living with serious mental health challenges are frequently victims of violence and have reduced life expectancy. Peer support interventions can be effective, but there is a need for more research on their competencies and implementation features.

    The Competencies and Implementation of Peer Support Interventions for People with Serious Mental Health Challenges: A Systematic Review · 2026 · DOI

  • From this perspective, patient associations appear as relevant actors not only because of their proximity to affected populations, but also because of their potential to surface social issues that remain insufficiently addressed in arenas dominated by technical and budgetary considerations.

    Patient associations as knowledge intermediaries in breast cancer governance in Mali: a prospective qualitative analysis · 2026 · DOI

  • Future research should consider incorporating individual interviews alongside focus groups to enable deeper exploration of participants’ views and should involve a more diverse sample, including participants with a wider range of health conditions, as well as researchers, healthcare professionals, and members of the broader public, to inform the development of PPIE strategies relevant across different contexts.

    Patient and public perceptions of involvement and engagement in healthcare research: a descriptive exploratory qualitative study in Hong Kong · 2026 · DOI

  • This study has several limitations. When CDCOs came face to face with the real liv‑ ing difficulties of PWUDs, a purely administrative and supervisory role was insufficient to respond to the needs in front of them and care‑giving behaviors emerged as a practical supplement to their formal role.

    Roles and Collaborative Practices of Drug Rehabilitation Social Workers and Community Drug Control Officers in Community-Based Drug Rehabilitation in China: A Qualitative Study · 2026 · DOI

  • Introduction/Aims Multidisciplinary clinics (MDCs) are the standard of care for amyotrophic lateral sclerosis (ALS), yet little is known about how well they meet patient and care partner needs, or how stakeholder engagement can be used to strengthen these services.

    Improving ALS Clinic Care Through Experience‐Based Co‐Design: A Participatory Action Research Study · 2026 · DOI

  • Future work should examine the delivery of recovery‑oriented education across multiple residency programs and training years to better understand its generalizability and impact. Outcomes were measured immediately following the session, and long‑term retention or behavioral change could not be assessed.

    Recovery-Oriented Education: The Impact of Visiting a Clubhouse on Psychiatry Residents · 2026 · DOI

  • Patient involvement in health technology assessment (HTA) at the organizational level remains relatively underreported in Asia.

    Establishing a Consumer Panel to Inform Health Technology Assessment Processes and Policy: impact and insights from Singapore’s experience · 2026 · DOI

  • Most work occurred in higher income countries and the impacts on PWLE were rarely explored.

    Co-production in community-based substance use disorder treatment services: a scoping review · 2025 · DOI

  • The opportunities for countries, including Japan, to participate in discussions on the HTA process did not differ significantly; however, information on PPIE in Japan was scarce and did not indicate their purpose and value.

    Value and Implementation of Patient and Public Involvement and Engagement in Health Technology Assessment for Japan: implications from systematic searches · 2025 · DOI

  • This scoping review aimed to generate evidence to design or adapt non-pharmacological MSK-fatigue support across the lifespan, by creating an overview of current knowledge and highlighting gaps in the literature.

    OA34 The contributions of Patient and Public Involvement and Engagement groups to the conduct of a scoping review of non-pharmacological interventions for reducing fatigue in children and young people with musculoskeletal conditions · 2025 · DOI

  • The participants found that insufficient information reaching patient organizations hinders participation…

    PP63 Perspectives Of Physical And Organic Disability Organizations On Health Technology Assessment Processes · 2024 · DOI

Most-cited papers in Mental Health and Patient Involvement

Most recent work

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Open questions raised by papers listed on this page include: (1) There is a lack of critical examination of the extent to which the original egalitarian promise of co-production has been realized (“A Critical History of Co‐Production in the Design and Delivery of UK Mental…”, 2026); (2) Co-design is increasingly used in chronic pain research; however, terminology remains inconsistent, guidance is lacking, and most research is concentrated in high-income countries (“Terminology and core components of co-design intervention in chronic pain…”, 2026); (3) Another challenge is the lack of studies on the impact of community-based cultural interventions on identity reconstruction (“Cultural Heritage as a Health Asset: A Systematic Review of Narrative Identity…”, 2026); (4) Peer support interventions can be effective, but there is a need for more research on their competencies and implementation features (“The Competencies and Implementation of Peer Support Interventions for People…”, 2026); (5) Future work should examine the delivery of recovery‑oriented education across multiple residency programs and training years to better understand its generalizability and impact (“Recovery-Oriented Education: The Impact of Visiting a Clubhouse on Psychiatry…”, 2026). 646 gap statements have been mined from Mental Health and Patient Involvement papers in our 7.9M-paper local library, which holds 5,301 papers on the topic; the gaps come from whichever of those papers state one. They are mostly the research gaps the authors state and the papers' abstracts, plus future-work, limitations and challenges passages. The ones listed below are a selection still marked open; each names the study that raised it, with a DOI link where the paper has one, so you can read the original claim in context.

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